The vision of CLOVES Syndrome Community is an improved quality of life for those living with CLOVES syndrome. Our mission is to support, …
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2021年5月26日
This organization is my everything! Truly and amazingly working miracles! They have pushed research forward, helped families in need and devoted themselves to giving all of the families everything th… Jennifer Padilla的完整评论
What is the purpose of the CLOVES Syndrome Registry?
答:
The primary aim of the CLOVES Syndrome Registry is to conduct a prospectively planned and efficient natural history study that will result in a more comprehensive understanding of the disease and...