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hemophilianewstoday
4 小时
Are hemophilia treatment centers in danger?
Federal funding ensures that hemophilia treatment centers can properly care for those with bleeding disorders, columnist Jennifer Lynne says.
hemophilianewstoday
5 小时
‘Problem joints’ linked to worse clinical outcomes in hemophilia A
Hemophilia A patients with self-described problem joints were found to have worse clinical outcomes, with more pain, in a new study.
hemophilianewstoday
3 天
Hemophilia bleeding isn’t always the root cause of our joint pain
With hemophilia, it's easy to assume that joint pain is caused by bleeding. But that's not always the case, columnist G ...
hemophilianewstoday
3 天
Hemlibra found to ease pain, improve life quality in hemophilia A
Hemlibra was found to ease pain and improve quality of life for hemophilia A patients, even those with long-term joint damage ...
hemophilianewstoday
1 天
Managing finances often proves difficult in life with hemophilia
For columnist Joe MacDonald, the many additional costs associated with his son's hospitalizations made managing finances a challenge.
hemophilianewstoday
4 天
Navigating metro transportation with hemophilia
Commuting in metro areas, whether by public or private transportation, is tricky for people with hemophilia, says columnist.
hemophilianewstoday
2 天
Imagining a reality TV show about life with hemophilia
MacDonald wonders what format a reality TV show might take to best capture the lives of people with hemophilia.
hemophilianewstoday
7 天
Blood stem-cell gene therapy leads to stable FVIII levels in small study
Gene therapy using modified blood stem cells helped five adults with severe hemophilia A reach therapeutic levels of clotting ...
hemophilianewstoday
14 天
First hemophilia B patients in Denmark treated with Hemgenix
For the first time in Denmark, people with hemophilia B have been treated with the gene therapy Hemgenix (etranacogene ...
hemophilianewstoday
7 天
Getting multiple vaccines at once led to a bad experience
After having a bad experience getting three vaccines at once, columnist Jennifer Lynne says that next time, she'll space them apart.
hemophilianewstoday
4 年
The Forgotten Factor
G Shellye Horowitz, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an ...
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