Life After, a documentary debuting today at Sundance, examines Elizabeth Bouvia's story, and conflicts between right-to-die ...
MDA launches 75th Anniversary campaign and premieres new public service announcement (PSA) to mark 75 years of impact in the ...
Filmmaker Reid Davenport weaves a powerful first-person perspective with a journalistic investigation about disability ...
One-year-old Asmika Das from Ranaghat, Nadia, is suffering from a fatal disease called Spinal Muscular atrophy.
Roche has reported positive results from the second year of the EMBARK Phase III trial of Elevidys (delandistrogene moxeparvovec), the first approv ...
Health department to open rare disease clinic at Government Medical College Hospital, Kozhikode, following parents' request for local treatment.
More research is needed to confirm gray matter, the darker tissue found in the brain and spinal cord, “as a potential disease ...
MNDs are neurological disorders that destroy motor neurons, the cells that control skeletal muscle activity such as walking, breathing, speaking, and swallowing.
Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...
Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...
The health activists argue that the government is empowered with effective law and policy tools and therefore should ...