When I first started dating my husband, who has CF, it felt like diving straight into the deep end of the CF world. I was completely overwhelmed at first, but everything changed when I discovered a ...

The Cystic Fibrosis Foundation, a 501(c)(3) nonprofit organization, has unrestricted financial reserves of about 10 times its 2024 operating budget. These reserves are largely a result of the ...

The Iowa Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your ...

I spent my childhood and young adulthood being told I was “too young and healthy” to be dealing with the health issues I experienced. But as an adult, I was determined to find answers, and eventually, ...

I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...

Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...

Throughout my childhood, I was thin and underweight thanks to cystic fibrosis. When my mother, my sister, and I would go to the trails near our house to exercise, I hated running. I could barely make ...

To be considered for a lung transplant, you must undergo an extensive evaluation at a transplant center. The process can take several days to several weeks, depending on the center. This evaluation ...

Your transplant team and CF care team can help you think about whether to get listed. Knowing the risks and benefits can help you decide when to get listed. It also helps to understand the factors ...

While you're on the waitlist for new lungs, there are some things you will have to do in addition to your normal routine to ensure you remain healthy and eligible for transplant. You will have ...