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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.
- HDFN Companion
About HDFN Companion. Just as many people with rare diseases and disorders such as Hemolytic Disease of the Fetus and Newborn (HDFN) suffer from unmet medical needs, so too do they suffer from unmet informational needs on the web.
What is HDFN? - hdfncompanion.com
Hemolytic disease of the fetus and newborn (HDFN) is a disorder in which a pregnant woman’s immune system attacks her baby’s red blood cells, leading to their destruction and resulting in severe anemia, also known as erythroblastosis fetalis.In severe cases, HDFN can be associated with permanent damage to the baby’s brain or even …
HDFN caused by rare blood groups poses unique challenges
2024年12月27日 · A closely coordinated clinical approach is warranted among patients with hemolytic disease of the fetus and newborn (HDFN) in whom rare blood group antibodies are involved, according to findings from a review of two case studies published recently in the J …
What you need to know about antibody titers and HDFN
5 天之前 · A healthcare professional holds up a vial of blood/Getty Images Learn more about how antibody titers affect HDFN, how they are tested and what can happen if antibody titer levels are too high. If you are managing a pregnancy affected by hemolytic disease of the fetus and newborn (HDFN), you will be ...
Patient Voices - HDFN Companion
Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.
The role of genetic testing and counseling in HDFN
2024年9月9日 · The most common cause of HDFN is a Rh incompatibility in which the mother is RhD-negative and the fetus RhD-positive. In recent decades, the sysematic administration of Rh(D) immunoglobulin to RhD-negative pregnant women has dramatically reduced the incidence of RhD-associated HDFN.. However, if the fetal genotype is not RhD-positive, the administration of Rh(D) immunoglobulin is unnecessary.
- HDFN Companion
Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.
What I would have done differently during my HDFN journey
2024年10月3日 · After the surgery, the doctor was able to fully explain and implement an action plan going forward to save our daughter’s life. I believe that finding an expert doctor early on in pregnancy would have made my experience less stressful.
Testing and diagnosis of HDFN - HDFN Companion
Diagnostic tests before birth. The tests that can be used to diagnose HDFN before a baby is born include amniocentesis, ultrasound, and blood tests on the mother or the umbilical cord.. Blood tests. A blood test can be done on blood drawn from a pregnant woman to see whether she has antibodies against the red blood cells of her baby.